Awareness.
Education.
Advocacy.
Support.
Hope.
Being Sickled is the public platform of Being Sickled Health Foundation, dedicated to improving the lives of individuals and families affected by sickle cell disease through education, advocacy, community programmes, and evidence-based health communication.
40k+
Community Members
10+
Programs & Initiatives
20+
Media Features
Countless
Lives Impacted
ABOUT US
Our Mission
To empower people living with sickle cell through awareness, education, advocacy, community support, and access to practical resources, while challenging stigma and creating opportunities to thrive beyond their diagnosis.
Raise Awareness
We increase public understanding of sickle cell disease through campaigns, storytelling, and community engagement.
Promote Education
We provide accurate, evidence-based information that helps individuals, families, and communities make informed health decisions.
Champion Advocacy
We speak up for better policies, greater inclusion, and equal opportunities for people living with sickle cell disease.
Build Community Support
We create safe spaces where individuals and families find encouragement, connection, and support.
Provide Practical Resources
We connect people with practical tools, trusted resources, and opportunities that improve everyday life.
Our Vision
A world where every person living with sickle cell is understood, supported, and empowered to live healthy, fulfilling lives free from stigma and discrimination.
WHAT WE DO
Featured Initiatives
Programs and projects designed to educate, empower, and uplift the sickle cell community
Paint Beyond Pain
A community arts & wellness event that promotes creativity, emotional well-being, and peer support.
Educational Animations
Short, engaging videos that explain sickle cell disorder, treatment, myths, and daily living.
Awareness Campaigns
Digital campaigns and outreach that amplify real stories and advocate for policy change and inclusion.
Community Support
Connecting individuals and families to resurces, guidance, and a strong support network.